At Maximus, we are dedicated to creating an inclusive workplace where every colleague and their experience is respected, and diversity is celebrated. Through our colleague-led networks, we champion the voices of every individual within the business, advocating for change at all levels.
As we mark this year’s UK Disability History Month, MaxAbility Board Member Steven Pugh reflects on his experience of living with spondyloepiphyseal dysplasia and the importance of supporting those with disabilities in the workplace.
Adapting to life with spondyloepiphyseal dysplasia
Living with spondyloepiphyseal dysplasia means my height is 4ft 6in, which brings daily challenges. Growing up, I faced ridicule; people often saw my height as a limitation before they got to know me.
My childhood was marked by frequent hospital visits and surgeries, making me work harder than most to keep up with my studies. This tough experience developed a strong determination that has driven me throughout my life.
As an adult, I experience constant joint pain, which worsens in cooler weather, but I’ve learned to accept this as part of who I am. From a young age, I’ve had no choice but to adapt to a world that isn’t designed for someone of my height and now pride myself on not allowing my condition to hold me back.
Entering employment
As I joined the workforce, I encountered prejudice and misconceptions. Even my careers advisor at school suggested that certain jobs weren’t for me due to my height. This only fuelled my resolve. I’ve always been frustrated by the way people judge me on my appearance rather than my abilities, but I’ve used that as motivation to succeed.
I spent over 18 years working as a retail store manager, but after becoming disillusioned, I joined a charity in North Wales, where I found purpose in advocating for underrepresented individuals. Several years later, I joined Maximus in May 2023, looking for the potential to further my career and skillset.
In retail, I had my share of difficult moments. I once had a customer tell me, “If people like you expect to live in society with us normal people, you should expect questions on your height.” Experiences like this have been disheartening, but I’ve learned to rise above them. At Maximus, I’ve felt valued for who I am and am supported by an incredible team. I thrive on the variety in my role, meeting new people and finding opportunities for our participants.
Witnessing a change in disability support
Over the last decade, I’ve noticed significant changes in how businesses support people with disabilities. Early in my career, disability support was minimal and often felt like a ‘tick-box’ exercise.
However, working for Maximus has been overwhelmingly positive and a refreshing change. I’ve had the privilege of travelling across North and Mid Wales, and been welcomed in every office. My colleagues see me beyond my limitations; they see me for who I am, not my condition, which makes me feel fortunate to work with such an accepting team.
While I haven’t faced discrimination at Maximus, I’ve encountered prejudiced attitudes in previous roles, fuelling my determination to advocate for change.
Reflecting on this year’s theme
This year’s theme, Disability, Livelihood and Employment, highlights the incredible achievements of those with disabilities, reminding us that success and fulfilment are within reach, regardless of one’s disability. It’s also a time to celebrate those who have broken down barriers, paving the way for others to follow.
There is still stigma around employing people with disabilities, and many see it as a risk, assuming we’ll require more time off or extra support. Employers need to be educated and supported so they can understand the potential of disabled employees.
Too often we’re overlooked due to assumptions about our capabilities, when we could be valuable assets to an organisation. With the right understanding and reasonable adjustments, workplaces can tap into this potential and foster more inclusive workplaces. be more inclusive.
Hopes for the future
Looking ahead, I hope we continue to move towards a world that sees ability over disability. Education is vital, not just for employers but for society as a whole, to support and understand diverse abilities. I’m proud to have recently joined the MaxAbility board, where I can contribute my lived experience to further our mission for inclusion.
At Maximus, I’m excited to be part of a journey that values diversity, equity, and inclusion, and I look forward to helping build a future where everyone can thrive, regardless of their background or abilities.
